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Democratizing Patient Data: A Story of Patient Empowerment

Democratizing Patient Data: A Story of Patient Empowerment

Democratizing Patient Data: A Story of Patient Empowerment

Kristina D. Sheridan, MS and Kate R. Sheridan
Kristina D. Sheridan, MS and Kate R. Sheridan
on behalf of Healthcare Information and Management Systems Society

$30.00 $ 30.00 $ 30.00

$30.00 $ 30.00 $ 30.00

$ 30.00 $ 30.00 $ 30.00
$ 30.00 $ 30.00 $ 30.00
Normal Price: $30.00 $30.00

Review:

Launch date: 14 Jun 2018
Expiry Date:

Last updated: 23 Aug 2018

Reference: 189918

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Course Availability

This course is only available to trainees days after purchase. It would need to be repurchased by the trainee if not completed in the allotted time period. This course is no longer available. You will need to repurchase if you wish to take the course again.

Description

The most critical member of the care team, the patient, is being left out. Their data are not captured in a way that can be leveraged at home by patients, or in the clinical setting by providers. There are few patient-facing tools designed to support their daily care at home, or capture how they are doing between appointments. This patient-caregiver session shares the challenges encountered when managing complex chronic conditions, and the strategies and technologies they leveraged to become active partners with their providers. This unique session offers both patient and caregiver insights into managing pediatric chronic conditions, the value of patient-generated data, tangible strategies and solutions used to support recovery, and an update of the patient empowerment research that was inspired by their experience.

Objectives

Discuss the barriers preventing clear communication from patients to providers, and describe patient-facing tools and strategies that support bi-directional communication
On completion of this course, the learner will be able to discuss the barriers preventing clear communication from patients to providers, and describe patient-facing tools and strategies that support bi-directional communication.
Show how the use of patient-generated health data can improve health outcomes, and discuss how this data can be integrated into the clinical setting
On completion of this course, the learner will be able to show how the use of patient-generated health data can improve health outcomes, and discuss how this data can be integrated into the clinical setting.
Demonstrate, with real-world experiences, how patient-facing tools can be leveraged to engage patients and their caregivers with their health, and empower patients to effectively manage their care outside the clinical setting
On completion of this course, the learner will be able to demonstrate, with real-world experiences, how patient-facing tools can be leveraged to engage patients and their caregivers with their health, and empower patients to effectively manage their care outside the clinical setting.
Explain why policies that incentivize the use of patient-generated data, and clinical studies that measure the benefit of this data, are necessary to the availability and use of patient-facing tools
On completion of this course, the learner will be able to explain why policies that incentivize the use of patient-generated data, and clinical studies that measure the benefit of this data, are necessary to the availability and use of patient-facing tools.
Kristina D. Sheridan, MS and Kate R. Sheridan

Author Information Play Video Bio

Kristina D. Sheridan, MS and Kate R. Sheridan
on behalf of Healthcare Information and Management Systems Society

Ms. Sheridan is an experienced long-term caregiver and patient advocate and has worked 25 years in systems engineering. She is the principal investigator for the MITRE research project, Empowering Patients and Providers to Partner for Best Care, researching how information technology solutions can empower patients to collect and track active patient-generated data, effectively manage their conditions between appointments and fully partner with their care teams. Ms. Sheridan combines her experience as a caregiver of chronic pediatric patients and a systems engineer to help the healthcare and health IT communities understand the complexities of managing chronic illness and to develop and provide tools that will ease the day-to-day burden of managing care. Ms. Sheridan advocates for the development of tools and processes that allow the patient’s story and data to be captured and used to develop treatment plans that best meet the needs and goals of the patient. She is an experienced speaker and has advocated for solutions to empower patients and caregivers in over twenty-five national healthcare forums. Ms. Sheridan is the Department Head for the Enterprise Transition Planning and Execution department at MITRE and has been a trusted advisor to senior government officials at the U.S. Food and Drug Administration (FDA), the Centers for Medicare & Medicaid Services (CMS) and the Veterans Health Administration (VHA). She also spent 18 years working in the satellite industry and received her MS in Astronautics and Space Engineering from Cranfield University, UK.

Kate Sheridan is a patient empowerment advocate and speaker studying Health Administration and Policy at George Mason University. Ms. Sheridan is also a chronic patient who survived a challenging journey through middle and high school battling a combination of complex chronic conditions. After losing the ability to read or play sports, Ms. Sheridan learned multiple coping skills to manage her symptoms, communicate effectively with her providers and to self-manage her medical conditions. She created an art portfolio telling the story of her recovery. Her experience as a pediatric chronic patient inspired Kate to become certified as an Emergency Medical Technician and then to pursue a degree in health administration with a long term goal to increase patient empowerment and improve patient outcomes.

Current Accreditations

This course has been certified by or provided by the following Certified Organization/s:

  • Accreditation Council for Continuing Medical Education (ACCME)
  • 1.00 Credits
  • American Nurses Credentialing Center (ANCC)
  • 1.00 Hours

Faculty and Disclosures

Kristina D. Sheridan, MS

Kristina D. Sheridan, MS

No real or apparent conflicts of interest to report.
Kate R. Sheridan

Kate R. Sheridan

No real or apparent conflicts of interest to report.

Additional Contributors

Conflicts Declared

Conflicts of Interest declaration by Author:

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